Assisted suicide: the importance of evidence

assisted dying bill

With the announcement of a new debate in parliament on ‘assisted dying’ in the coming weeks, many people are anticipating the end of what they term a ‘cruel law’ that prevents medical practitioners from giving patients lethal drugs so that patients can end their own life. As Esther Rantzen has said, ‘all I’m asking for is that we be given the dignity of choice.’ Those like Dame Esther in favour of a change in law argue that evidence from other legislatures shows that with proper safeguards there is no abuse, no coercion, no slippery slope. As the advocate of several attempts to change the law, Lord Falconer has said, 300 million people around the world already have access to ‘safe, tried and tested assisted dying’.

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Charlie Gard, Alfie Evans and Indi Gregory: finding the hope

Hope

Indi Gregory was not simply another tragic case of a very poorly infant nor the latest case of another contentious end-of-life court case, though her case was the latest in a line of cases where courts sided with doctors against the wishes of parents. Indi was a beloved child, and everyone involved in her care wanted the best for her. The problem was they disagreed on what was best. Unfortunately, it is likely that there will be similar cases in the future which is why it is fruitful to reflect on attitudes and principles underlying decision making in these heart-breaking cases.

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Transparency, capacity and the nature of palliative care – the case of Sudiksha Thirumalesh

palliative care

In the majority of cases patients and their families trust their doctors. However, there is a growing number of high-profile cases hitting the media where patients, and especially the parents of very young and very poorly infants, simply do not agree with their doctors. Significantly, these cases are where the life of the patient is at stake and doctors believe that it is better to withdraw or withhold treatment and allow the patient to die ‘with dignity’.  

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When the AI tool has a name and the embryo a number

Pregnancy test

CHLOE is not only a popular girls name. CHLOE is also the name of a new AI-based decision support tool in use in a handful of fertility clinics. Developed by the Israeli company Fairtility, “Cultivating Human Life through Optimal Embryos” (CHLOE) has been promoted as a tool to, in the words of the company, help improve IVF outcomes by helping to determine the likelihood of an embryo becoming a viable pregnancy. CHLOE is used to monitor and analyse embryos so that embryologists can make ‘better decisions’ on which embryos to implant. The AI tool has been clinically tested on over 50,000 embryos and works by grading and giving a score to an embryo based on an algorithm. The AI tool has a name, CHLOE, the human being at his or her early stage has a number, is analysed, graded, and given a score for quality.

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When your mother’s not your mother: the problems of normalising surrogacy

Surrogacy

For most couples, the desire to have children is deeply imbedded in their relationship. After all, human beings are made for love and children are a real expression of love. So, when couples discover that they cannot have children this can be devastating. On the other hand, some couples, notably same sex couples, enter their union knowing from the outset that having their own children together is impossible, yet they still yearn to be parents, as do some single people who are not in any relationship. ‘Welcoming’ a child via a surrogate mother seems to provide the answer. Influential celebrities who use surrogate mothers have become role models for surrogacy and hold out this as an option for all. However, the desire to be a mother or father does not justify any right to have a child. Children have the right to be born in their own real families with their own mother and father.

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Is there a right to die? Assisted suicide, assisted dying and changing the law

‘To have a right to do a thing is not at all the same as to be right in doing it’. These words from G.K. Chesterton’s A Short History of England are a salutary reminder to those who claim certain rights. And now, not for the first time, a new right has been proposed: the right to die. Over the last few years a number of bills advocating for a change in the law to allow for assisted dying or a right to die have been brought before Parliament. All have so far failed. Yet, the assisted suicide campaign continues.

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Covid and healthcare – why we must learn not to leave the disabled behind

Covid vaccination

At present I am waiting for my daughter’s Covid vaccination appointment. My daughter, now an adult, has profound severe multiple disabilities. She cannot tell me if she feels ill or in pain, and certainly not if she has lost her sense of smell. Like many people with disabilities, especially those with learning disabilities, when it comes to health and social care it is easy for my daughter to fall through the gaps.

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